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Wellist Privacy Commitment

Updated December 19, 2014

Our mission is to make life easier for patients and their families by providing personalized service recommendations and a gift registry. Our online resources are designed to enable members to gain access more easily to a wide range of non-clinical support services. As we design these tools, we are committed to carefully using the information we collect from our members.

Our privacy commitment is to:

Only collect data that is useful to improving Wellist resources, level of service, and your experience.

Convey our data collection policies in a transparent manner.

Take the security of your data seriously.

To understand more about the information we collect, how we use it, and the ways it can be shared with others, please read our Privacy Policy below. Please feel free to contact us with any questions.

Wellist Privacy Policy

Updated December 19, 2014

Wellist’s mission is to make life easier for patients and their families with an online resource that offers personalized service recommendations and a gift registry. As we continue to build new ways to make life easier for our members, we may revisit the terms of this policy over time. We will provide notice to our members by email for any substantive changes, and will keep the most updated notice on our Websites.


1. Information we collect and how we use it

2. Information sharing

3. Updating or removing your personal information

4. Personal information safeguards

5. Privacy notices

6. Privacy policy changes

7. Links to other sites

8. Contact Information


1. Information we collect and how we use it

Data entered into the entry questionnaire: These data may include a range of topics, from contact details, to information about the patient’s disease, to preferences on location and service price range. We gather this data in order to provide personalized recommendations, and we may refer to it in order to improve the services we offer.

Services you express interest in: We note services that you are interested in based on your activity on the site. For example, we keep track of the services that patients add to their Wellist or Wellistry, with the objective of understanding which services are (and are not) appealing to patients.

Supporter activity: We capture the basic supporter contact information you provide, as it is required to let supporters know about the services patients list on their Wellistries, and to contact you after donations are made. We also capture usage data from supporters, to, for example, understand which services are receiving more (or fewer) donations and understand how to make our service easier to use.

Feedback you provide: Feedback you offer on vendor (e.g., 1-5 star ratings) are recorded so that they may be made visible to other members and services partners. Wellist may also offer opportunities to participate in surveys that help us understand how we can better serve you. Information you provide us will be used to make our service better.

In general, Wellist uses your data to provide you with the best experience possible. Also, in an effort to constantly improve, we will also use your (as well as other Wellist members’) experience on our site to find the best ways to connect you to all the support you might need.

Wellist is not directed at persons under the age of 13. We do not knowingly collect any information from children under 13. If you are aware of a user under the age of 13 using Wellist, please contact us at support@wellist.com.

Wellist.com utilizes cookies – small pieces of data stored on your computer by your Internet browser – that identify your computer and record your visit. Using cookies helps us improve the design of our site and gather general information such as how many users visit our site, how many are new versus repeat visitors, the date and time of the visit, which pages were viewed and how often visitors return. You can use your Internet browser preference buttons to turn off cookies, however, this may prevent you from accessing or using certain features of the Websites. We use tracking technologies from Google AdWords. We guarantee that your personal information will never be sold or used irresponsibly at any time. We do not store your information on any of our hard drives.

2. Information sharing

Wellist shares data to improve our members' ability to connect to all the support they may need, and to enhance the functionality and service we provide to members. For example,

·       We will share members’ level of interest and feedback on services (e.g., 1-5 star ratings) with other Wellist members in order to enhance their ability to choose the right service for them

·       We will share the degree to which Wellist members are, in aggregate, interested in specific categories and services with potential vendors who are interested in being included on our site

·       We plan to provide aggregated reports to our sponsors (e.g., hospitals) on what services our members are receiving through Wellist, as well as member satisfaction feedback offered regarding Wellist services

·       We will look for opportunities to show the broader impact of using Wellist on overall positive health indicators (e.g., lower stress, improved health, etc.), and will plan to share this analysis with potential partners (e.g., hospitals, insurance companies, other healthcare entities)

3. Updating or removing your personal information

Some of the information you offer can be updated, added to, or removed online in your account dashboard or preferences. If you would like to make changes to or remove additional information, please contact us at support@wellist.com.

By creating an account, you agree to receive occasional e-mails from Wellist. You can opt-out of receiving email outreach by changing the notification preferences in your account settings or by unsubscribing via the “unsubscribe” link in out emails. Opting-out of these emails will not end transmission of important service-related emails that are important to your account maintenance.

4. Personal information safeguards

We maintain reasonable administrative, physical and technological measures to protect the confidentiality and security of your personal information. We restrict access to our data center and our databases, and we use a secure server dedicated to online donations to protect your personal and financial information. We also have firewall protection in place.

Unfortunately, no website, server or database is 100% secure. Therefore, we cannot guarantee its absolute security. For this reason, you should use care and discretion when you post content on a Site and never post information that can be used for identity theft purposes.

If you have a security related concern, please contact us at support@wellist.com.

5. Privacy notices

This Privacy Policy may be supplemented or amended from time to time by "privacy notices" posted on the Wellist site. These privacy notices provide a level of detail that we cannot provide in this more general description of our privacy practices. For example, certain pages of the Wellist site contain privacy notices providing details about the personal information we collect on those pages, why we need that information, and choices you may have about the ways we use that information.

6. Privacy policy changes

As we continue to build new ways to make life easier for our members, we may revisit the terms of this policy over time. We will provide notice to our members by email for any substantive changes, and will keep the most updated notice on our Websites.

In the event Wellist goes through a business transition, such as a merger, acquisition by another organization, or sale of all or a portion of its assets, the information we acquire may be among the assets transferred. Members will be notified via this Site of any such change in ownership or control of Personal Information.

7. Links to other sites

The Wellist Websites contain links to other websites (e.g., service vendors’ pages) that are not under the control of Wellist. Including these links does not imply endorsement by Wellist, and Wellist is not responsible for the content of these outside services.

8. Contact Information

If you have any questions about our Privacy Policy, please contact us by email at support@wellist.com, or by mail at Wellist Support, 125 Broad St, Floor 2, Boston, MA 02110.

Are you a patient, caregiver, or hospital staff member looking for support?
Contact our Patient Support Team M-F, 8AM‌-6PM EST at

Are you a vendor interested in being listed on Wellist?
Contact our Vendor Team M-F, 9AM‌-6PM EST at:

Any other inquiries, please call our main number:

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